Is anyone else here disabled?

I have tried to skim through the posts,a few a day.My heart goes out to each of you  and your loved ones.:heart:..I think this thread was a great idea,Kemi.

I seldom talk about it but I have been disabled with multiple issues for almost 24 yrs now.To look at me on my little bit better days,you probably would not know  it   unless you know  me  and see it in my eyes .Like others have stated,most people do not understand so all I say is I am in pain and leave it at that.The agony I feel is a very personal thing to me,only really seen by my husband.

What really hurts is when your family you are born into  does not understand why you cannot go to all the functions they want you to,etc..But I have come to realize that if they truly love me,they will try to understand.

There is no cure and no meds my body can handle for my illlnesses,so I just take it a day at a time and do the best I can..My hubby has been very supportive and is the best support system I could ask for,in addition to my best friend IRL and my online friends…They ask me no questions.They just accept my limitations and I am grateful for that.

1 of my issues is chronic pain and I would not wish that on anyone.But I do think it has helped me to be a stronger person and much more empathetic to others with any type disability.

The touch of clothing on my body is very painful so I wear my gown and robe at home.I always try to find something funny in my situation so that reminds me of our oldest male basset we used to have..Somehow he knew when I was dressed up to go anywhere,hair,MU and jewelry on ,because he would start crying,knowing I would be away..I always laughed:smileylol: and told him I would be home as soon as I could and get my gown back on.I think 1 of my neighbors thinks I own no other clothes.:womansurprised::smileylol:

I want no pity from anyone,just an understanding of my limitations.I have so much to be thankful for too and my disabilities  are  just 1 part of my life.It does not define me.I am still the same person I always was.:womanwink:

May God bless each of you and I hope your good days far surpass the bad ones.:heart:

Hugs to you Kamiqueen and hugs to all of you, Have been disabled for 20 years with Reflex Sympathetic Dystrophy  Latent Type 3. (Causaglia) October is RSD Month LOL. Is a very rare disorder and so painful I now live with a spinal morphine pump. Ack! Wont bore anyone with the description of RSD. My legs have contractured and drawn up…..the pain is immense. I survived being in Hospice in 2009…sometimes I have those dark thoughts of WHY??? A once vibrant soul who worked 6 jobs at once is now confined to home in a wheelchair is not my definition of living. I do get some fire under my back end and insist on traveling when able despite the aforementioned.

My grave situation is what it is and although I have come to accept my life span is not much longer I do not feel sorry for myself. Looking back I lived and lived ALOT. I dont get on here as much but I do miss posting. Hats off to you all.

SO SO SORRY EVERYONE FOR TYPING IT TWICE.  THE FIRST ONE I GOT SPANKED ON USING A WORD H—.  SO I RE-TYPED IT AND IT SHOWED UP TWICE.  I WAS HAVING TROUBLE LOADING THIS…THAT’S WHY I TYPED IT AGAIN DROPPING THE “H” WORD….LOL….OOPPS!!!!  HATE IT….LOL…

I’M BAD  :womantongue:

Mommyme, I totally understand where your coming from my luv. My oldest grandson (10) has autism.  When we go places people stare at him (because he has tick like spasms.)  They look at him as their faces saying “Dang, what a bad kid…or what the hell is wrong with him and the way he acts.”  You probably understand well…how I get really worked-up.  Really have to control myself on my looks (at them) and my actions.  The Mama Bear (me) comes out.  And there are times I do “GROWL”  :womansurprised:  I’ve heard my husband say, “Oh oh..IT’S ON” like he knows I’m gonna go Charlie Sheen on them..lol.  It’s a VERY HARD AND CRUEL WORLD WE LIVE IN.  I do understand and stand by “YOU AND YOUR CHILDREN!”  Really don’t know how society would take me and you with our children together somewhere….”IT WOULD BE ON!!”..LOL :womanlol:

Mommyme, I totally understand where your coming from my luv. My oldest grandson (10) has autism.  When we go places people stare at him (because he has tick like spasms.)  They look at him as their faces saying “Dang, what a bad kid…or what the hell is wrong with him and the way he acts.”  You probably understand well…how I get really worked-up.  Really have to control myself on my looks (at them) and my actions.  The Mama Bear (me) comes out.  And there are times I do “GROWL!!” :womansurprised: I’ve heard my husband say, “OH **bleep**..IT’S OWN!”  like he knows I’m gonna go Charlie Sheen on them..lol.  It’s a VERY HARD AND CRUEL WORLD WE LIVE IN.  I do understand and stand by “YOU AND YOUR CHILD!”

Really don’t know how society would take me and you with our children together somewhere…”IT WOULD BE ON!!!”..

LOL…..:womanlol:

I know this is certainly not applicable to most posting here but many years ago, I had a condition that caused me daily pain and discomfort. I think if I didn’t have a little kid, I would have stayed in bed and slept all day. Everything took so much effort. Finally after a few years, I kind of threw in the towel and accepted it and I guess my body relaxed, I calmed my mind and guess what? Slowly but surely my body healed itself. It would flare up every so often but I told myself it went away in the past and it would again. The mind is so powerful.  It can cause pain and cure or lessen pain. My heart and prayers go out to everyone here. Wishing you healing and peace and many blessings.

Living with chronic pain.

Thank you kemi for your prayer’s.  

To all of the community family dealing with a temp. or permanent disability trust me when I say PAIN I understand.  I want everyone well.  You are like a family to me.  Three days after the surgery I just wanted to say hello.  I can only be in the forum a short time.  I miss posting but I just can not do it now.  I will be back soon.  The disabled are important to all.   Take care of yourself and I will be thinking of you all.

WELL DONE KEMIQUEEN!!!  

:heart: This is a hard one for me.  Every day that I wake is a blessing.  Just went through another surgery this week so much pain kemi.  I have lived for almost two decades like this.

4 Everyone we all need it:heart::womanhappy:

Yes, I am isabled for several years and live on Social Security Diablitiy check per month:)

I can relate quite well with other people and their problems:)

Donald Trump wouldn’t make a good example for us disabled people by making fun and gestures about them:(

Thank you for asking:)

Love,

Linda

xoxo

What makes me irritated is the insensitive people that have the audacity to say constantly “Well, you don’t look sick!” or ” Why do you have a frown on your face?”.   Do they not realize there are illnesses that you cannot see & also sometimes the pain is so excruciating that you don’t mean at all to have a frown on your face at all but the pain is so so intense you don’t even realize your mouth is turned down in pain????  And also, for the people out there that think that just because people are home disabled that these people are just sitting home & eating bon bons!  Sometimes it is an effort to get out of bed & just because we are home doesn’t mean we are responsible for picking your children up for school, baking all your holiday cookies because “you work & are busy” & that “we have all the time” to do everything for them at their beck and call. Sometimes disabled people have such debilitating migraines they are bed bound so you tell me how they can make promises that sure we will pick your children up for school & sure we will be more than happyto make all your holiday cookies because you are much more important because you work and are  “so so busy” yet I had to give up my ful time career because of an illness that I didn’t ask for and would love to be back working again & making the income I made & yes, just because you can’t see my illness even though I limp & the pain is in my eyes doesn’t mean I have to go around looking like a scruff and not shampooing my hair and dressing like a slob. Hope some of you understand where I am coming from, I am finally admitting I am 100% disabled and am tired of being ashamed of it & being looked down on because of it, I have had it with people and their nasty looks and judgemental comments. Thank you all for reading my story. I have been 100% disabled since 09 and have been ashamed to put it out there, tired of being judged. I came on the forum as an outlet to meet people all over the US and to enjoy chatting about all the things I miss out on, I miss my old life but have accepted it that is no more  & try to make the best of it and I am sorry  if I make spelling mistakes & punctuation errors it is my medications that cause me to be forgetful so forgive me if I do that and annoy anyone as well, it is not intentional. I try to lift each and everyone of you up and enjoy chatting with you but lately I haven’t been on as much. Just have felt discouraged…… BTW- I even get made fun of & judged critically because I online shop, it is so painful to shop & walk around shopping so is so convienient to be able to online shop & I am so tired of being humiliated & embarrassed by people mentioning it out loud as if I am committing a crime that I online shop. I had to come back & edit &  add these things, I feel like a burden has been lifted off of me as I have been on the forum for over 2 1/2 years & not a whole lot of people knew this, I kept it secret as I was embarrassed, I wanted to comfort & uplift others & not focus on myself, I wanted to bring joy & happiness to others & read about your exciting lives & trips & assist with things but I began to feel as if I was starting not to fit in so I stopped posting. This is such a relief to finally bring it in the opening, I have chronic migraine 17 + a month, chronic pain syndrome & fibro, I have traveled to several hospitals in hopes to be operated on but if I am operated on there is a 98% chance I will be paralyzed from the neck down so I suffer daily in pain & cannot be put on a higher pain medication or I will not wake up. I want to express I DO NOT WANT PITY, it just feels ok to finally be heard as I have kept this in so so long. I just want to have interraction with you all & discuss jewelry, skincare, makeup, life, fun things,experience things with you. Thank you again for reading my story & lifting the stress off my mind that I have held in way too long…

One of my children is. People are cruel/insensitive and nothing surprises me any more. Hugs to you, my friend. 

Kemiqueen, your a sweet soul and i feel blessed to know you here. :womanhappy::heart: I can relate to being disabled. Some people see the glass half full and others see differently. You say you have alot to be thankful for and i think that is wonderful and beautiful to feel this way. God Bless you.:heart: